So I havent updated about the POTS in a while, mainly because I have been busy getting my life back! Its been amazing really how the new meds have helped me so much. I still need to be very careful and can have very bad days but overall I am doing fantastically well and almost feel normal!
I see my Specialist which will be next on the 20th of this month and since talking to you last I can stay up all day and not have to nap, my blood pressure rises a little throughout the day after taking the meds and returns to very low again at night but the energy during the day has definatly improved. Side effects from the medication has nearly all gone, no creepy crawley skin feeling anymore and the heart palpitations have just about stopped and rarely bother me now. I can stand and walk for much longer without needing breaks and even today took a walk in Glenstal Woods for the first time since before getting sick and did great, no problems at all and even took photos!!
Yesterday I was at 3D Camp all day in UL, from about 11am to nearly 5pm, mostly on my feet and moving around, I did a presentation for 30mins standing and despite technical difficulties it was very well received and it went great. I then did a demo of my project during the lunch break and then straight onto an Arduino workshop upstairs in the computer lab with the wonderful help of my better half, Keith. Overall it was a busy and fantastic day of talks, workshops and meeting new people and it was the first day I had been out for so long since my stay in hospital and did really well.
I have no more news other than how well I am doing and I am very happy with that, I just hope that I can give hope to others suffering with this ailment that despite what you may read on the internet about Dysautonomia, theres no better cure than the power of positive thinking, Wonderful supportive husband, family and friends and dont be afraid to get out there and try some things when you are up to it. As well as having a specialist who is very much on the ball with knowing his stuff about this contition and he seems to have gotten my meds right and I am just about back to a normal life in a relatively short period of time, I have a long way to go yet but I feel like im nearly there and to me thats really something. I am back to doing some work and getting out and about much more and it feels fab! :)
Chin up, if I can do it, you can too and dont believe all the drama kings and queens online, POTS can suck but only if you give into it, prove them wrong! 
